Information on data protection

Your participation in the online survey with admedicum Business for Patients GmbH & Co KG (admedicum).

For maximum security of your data, the online survey is completely anonymous and of course voluntary. admedicum is acting as the data controller according to Art. 4.7 of the European General Data Protection Regulation (GDPR) in this respect and we guarantee compliance with its strict protection standards.

As such, we ask you to read and agree to the following privacy policy before giving your personal data. The legal basis for the collection of data by admedicum results from art. 6.1 a) of the GDPR.

Purpose of the online survey

Survey for patients with a confirmed NTM lung disease diagnosis who are currently either being treated for NTM lung disease or who have symptoms of NTM lung disease.

De doelstellingen zijn:

Inzicht verkrijgen in de impact van de ziekte op het dagelijks leven en de activiteiten van de patiënt, door naar de patiënt te luisteren.
Understanding patients’ burden and needs.
Opsporen van mogelijke belemmeringen voor toegang tot medische zorg en van hiaten in de gezondheidszorg.

The online survey will ask questions about the burden and management of NTM lung disease in your daily life, including the type of treatment you receive. Under no circumstances will products be described or recommended directly or indirectly in the survey.

Data Processor

The survey is conducted via an online data collection platform. The name of this company and therefore the data processor is:

SurveyMonkey Europe UC

2 Shelbourne Buildings,

Second Floor,

Shelbourne Rd,

Ballsbridge

Dublin 4,

Ireland

Survey Monkey’s privacy policy can be viewed in detail here: https://www.surveymonkey.com/mp/legal/privacy-basics/

Data Protection Officer

admedicum is ultimately responsible:

Dr. Ruth Reimann

admedicum Business for Patients GmbH & Co KG

Industriestraße 171

50999 Cologne, Germany

dataprotection@admedicum.com

Phone: +49-2236-94733-60

Will personal data be collected during the online survey?

No personal or identifiable data will be collected. Even your IP address will not be tracked when participating in the online survey. There is no way to trace your data entries back to you.

At the end of the online survey, we will offer to send you a summary of the online survey results when they become available and / or to be contacted for an interview and / or for future research purposes in the field of NTM lung disease. If you choose at least one of these options, you will be asked to provide personal contact information in a separate contact form which disconnects this information from your answers you have previously provided in the online survey. Therefore, your answers in the online survey and personal contact information cannot be combined. Before you decide to provide such information, you will be asked to agree to a separate privacy policy.

How do we use the anonymous online survey results?

The anonymous, individual results of the online survey will be analyzed by admedicum. They may be published in aggregated form by admedicum and/or third parties such as patient associations, physicians and pharmaceutical companies.

What rights do you have regarding your data?

Your participation in the online survey is entirely voluntary. However, once you answer a question in the online survey, you cannot revoke your consent to use the data collected. Because the data is anonymous, we cannot trace back and single out which data belongs to you.

If you have any questions regarding data protection, please contact our data protection officer: